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The Full-Time Job of the Chronic Patient
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The Paperwork Trail Most people think of medical care as a series of appointments. But for those of us navigating complex shifts and chronic illness, care is actually a chaotic, invisible administrative job. It is a life of managing thick folders of paper, tracking down faxes that never arrived, and manually connecting the dots…
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The Pituitary Red Herring & Renewed North Stars
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The Abnormality of Hope Less than a week after my surgery, I found myself back in the ER, this time because of a strange tingling sensation in my brain. But unlike before, I wasn’t alone. A friend had just flown in from Texas, and while I advocated for myself with a voice I had…